Best Practices for MS Disclosure

Once you’ve fully addressed the previous post’s MS disclosure questions, weighed your options, and feel confident that disclosure is the right step, the next challenge is navigating the conversation effectively. A well planned approach (including a simple accommodation letter, if needed) will help you advocate for yourself, ensure you receive the support you are entitled to and safeguard both your professional and personal growth. These practical tips will help you disclose with confidence while setting yourself up for success.

The Do’s: Best Practices for MS Disclosure at Work:

1️⃣ Do prepare thoroughly. Research your rights, understand your needs, and define your goals before initiating the conversation.

2️⃣ Do choose your timing wisely. Pick a moment when workloads are manageable so you can focus on the conversation without added stress.

3️⃣ Do document everything. Keep detailed notes of discussions, agreements, and accommodations. From disclosure day forward, protecting yourself should always be a top priority.

4️⃣ Do focus on solutions. Frame the conversation around how accommodations will enable you to continue excelling in your role.

5️⃣ Do consult experts. Seek advice from MS advocates, legal professionals, or support groups to strengthen your position.

6️⃣ Do set clear boundaries. Be specific about what information should remain private and who should be informed.

7️⃣ Do follow up regularly. Ensure accommodations are working effectively and address any issues promptly. Conversations are helpful, but documentation is essential.

8️⃣ Do maintain professionalism. Keep the focus on your role, capabilities, and contributions rather than personal challenges. While this is deeply personal for you, it’s likely just business for everyone else.

9️⃣ Do revisit your decision. Periodically assess whether your disclosure arrangement is meeting your needs. If not, raise the issue and adjust accordingly.

🔟 Do prioritize self-care. Advocacy begins with taking care of yourself—your health and well-being should always come first.

The Don’ts: Common Mistakes to Avoid

1️⃣ Don’t rush into disclosure. Take your time to evaluate the benefits and risks before making a decision.

2️⃣ Don’t disclose without a purpose. If you don’t need accommodations or support, consider whether disclosure is necessary.

3️⃣ Don’t overshare. Stick to relevant details about how MS impacts your work, there’s no need to discuss personal medical specifics.

4️⃣ Don’t assume confidentiality. Be selective about who you disclose to and clarify how your information will be handled.

5️⃣ Don’t expect immediate results. Workplace accommodations may take time to implement, having patience is key.

6️⃣ Don’t ignore red flags. If your gut feeling is disclosure may negatively impact your career, explore alternatives before moving forward.

7️⃣ Don’t downplay your needs. Be honest about the accommodations that will help you succeed without overburdening yourself.

8️⃣ Don’t neglect your rights. Know your ADA protections and be prepared to advocate for yourself if necessary.

9️⃣ Don’t let fear hold you back. If disclosure feels necessary, trust your preparation and approach the conversation with confidence.

🔟 Don’t stop advocating for yourself. Your needs may evolve, stay proactive in ensuring they’re met.

Ultimately, whether or not you share your MS diagnosis, be proud of that you have made an informed decision. Still not sure whether to disclose you MS at work? Make sure you check out this essential decision guide that walks you thru the key questions you need to be asking.

Let’s keep the conversation going.

If you’ve been through the MS disclosure process, I’d love to hear how it went for you—what worked, what surprised you, and what you might do differently. In this article from the National MS Society, the author reflects on the unexpected strength that came from his MS disclosure.

Your insights and experience might just light the way for someone else who’s just behind you on this path. Please feel free to share your thoughts and experience in the comments section below, or feel free to reach out through my contact page.

Be balanced, stay strong.